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Morning medicines
Sam’s day begins with a dose of Topiramate, Clobazam and Vigabatrin flushed down with a big syringe of water. Tagged: clobazam, medicines, topiramate, vigabatrin
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Day in the life
Well there is no such thing really as a typical day for us. Sam makes up his own rules as he goes along – no two days are ever the same. But we do have to have a rough routine for his medicines so I...
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Meeting with Dr H
This coming week we have an appointment with Samuel’s pediatrician and we have a lot to discuss regarding the Ketogenic Diet. We are still feeling that it is working and certainly making a difference...
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Seizures suck
I was almost going to call this blog post ‘Missing in action’ as that’s how I feel I’ve been lately. But this title sums up our mood quite well! We had our brief spell in hospital in early January for...
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Paraldehyde – the fragrant rescue medicine
Samuel’s rescue medicine has been Midazolam for a very long time. I think most (if not all) of the epilepsy world know about Midazolam. Samuel has had it since the beginning where he was given it...
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Seizures suck
I was almost going to call this blog post ‘Missing in action’ as that’s how I feel I’ve been lately. But this title sums up our mood quite well! We had our brief spell in hospital in early January for...
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